Talking Points for Children of Hoarders

Sidney Patrick (as drawn by Jim Smith)

Preface: This post has been sitting in my Drafts folder for a painfully long time. Its roots lie in a conversation I had with Sidney Patrick last October, just before her appearance on HuffPost Live to discuss "Hoarding's Harsh Reality". Although she wasn't a child of a hoarder, she was very familiar with COH experiences, and she had become an incredible advocate for the COH community.

Many COH believe that the needs and experiences of the families of hoarders are inadequately recognized by professionals (a topic for another day). Sidney wanted to convey that perspective in her HuffPost Live appearance, especially since one of the other guests was Professor Randy O. Frost, arguably the most influential academic in the field of hoarding. At Sidney's request, I tried to identify a few key points that she might raise during the segment. The points are included below.

Sid did a spectacular job on the show. Tragically, she passed away at far too young of an age just a few weeks later. She is profoundly missed.

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Talking Points for Children of Hoarders

As general awareness of hoarders and hoarding increases, the impact of hoarding on individuals beyond the hoarder is slowly becoming recognized.

For several years, children of hoarders (COH) have been comparing notes and sharing perspectives in a range of forums and formats, and a few recurring themes seem particularly important, at least in my opinion. I've tried to collect a few of these themes below. Perhaps they might serve as useful "talking points" for children of hoarders who find themselves being interviewed by media or who simply want to convey to friends and associates the seriousness of hoarding's impact on families.

Please feel free to use them, to critique them, or to add to them as you see fit. (If you have additional thoughts about these points, I'd love for you to share your feedback in the comments section at the end of the post. These points already have been improved immeasurably by the input of members of the Children of Hoarders Yahoo! Group.)

COH Talking Points

1. Many children of hoarders grow up under conditions of serious neglect, isolation, and abuse.
2. The impact of growing up in a hoarding environment can last for years—even decades—after a COH moves out of the childhood home.
3. While hoarding appears most dramatically to be about "stuff", to a child of a hoarder, it's really about relationships, family dynamics, shame, and self-worth: many children of hoarders have been conditioned—consciously or otherwise—to believe that they are less important than things.
4. As victims of serious, long term neglect or other types of abuse, many COH will require—and benefit from—equally serious support and counseling. Their needs are as important as the needs of the hoarders.
5. Children of hoarders seeking support should visit ChildrenOfHoarders.com for more information, and healthcare professionals should read Dr. Suzanne Chabaud's article in Psychiatric Times, "The Hidden Lives of Children of Hoarders".

As a final thought, children of hoarders sometimes are portrayed as being inappropriately angry, impatient, or otherwise unsupportive of family members who are undergoing treatment for hoarding. Professionals, in particular, are reminded that many children of hoarders have suffered a lifetime of neglect and abuse and are desperately in need of support. In such cases, expecting COHs to be patient and respectful participants in the treatment of hoarders may be likened to expecting victims of sexual abuse to help their abusers to get treatment, without acknowledging the damage done to the victims, much less getting treatment and support for them.

In memory of Sidney Patrick.

Sandy Hoards

I've been on a little bit of a hiatus lately, for a number of reasons, but I hope to resume reasonably regular posting very soon. In the meantime, I'd like to share a few recent news articles involving hoarding in my old home state of New Jersey, particularly in the context of last year's extremely damaging tropical storm, Sandy.

The Daily Record:

• April 7, 2013 - "Hoarding hits home: Sandy blew the lid off a New Jersey epidemic." (There is a comment thread about this article on Children of Hoarders Inc.'s Facebook page that might be worth a look.)
• April 8, 2013 - "Hoarders take toll on families: Relatives must often step in, seek assistance." (There is a comment thread about this article on Children of Hoarders Inc.'s Facebook page that might be worth a look.)

USA Today:

• April 8, 2013 - "Superstorm Sandy blew the lid off hoarding trend." (A condensed version of the April 7th Daily Record article.)

While I'll quibble with the headline characterizations of hoarding as an "epidemic" or as a "trend," the reporter, Lorraine Ash, did a pretty good job addressing the subject. Importantly, all of the articles include quotes from a few children of hoarders, including ChildrenOfHoarders.com spokesperson, Elizabeth Nelson. I particularly recommend the April 8th Daily Record article, which focuses on family impact.

HuffPo on Hoarding's Harsh Reality

On October 8, 2012, HuffPost Live, the new video streaming network from The Huffington Post, produced a segment on "Hoarding's Harsh Reality." Hosted by Alicia Menendez, the segment featured Frances Boudreaux (author and daughter of a hoarder), Sidney Patrick (blogger and advocate for children of hoarders), and Randy O. Frost (professor of psychology and hoarding researcher).

While the segment began with a general description of hoarding as a disorder, most of the discussion centered around the impact of hoarding on families and children. I think many children of hoarders will find both Ms. Boudreaux and Ms. Patrick to be refreshing and empowering voices. They really did a terrific job of conveying the challenges faced by children of hoarders and other family members.

Other children of hoarders contributed interesting thoughts in the segment's comments section, but, as is typical for internet comment sections, one or two miscreants shared their ignorance, showing that much more work needs to be done to increase awareness of the impact of hoarding on families.

To see the segment, visit "Hoarding's Harsh Reality."

PS. You can buy Frances Boudreaux's book, Where the Sun Don't Shine and the Shadows Don't Play, through Amazon and other booksellers, and you can read Sidney Patrick's blog at My Mother In Law is Still Sitting Between Us.

COH Brochure

There is a house in my neighborhood that is an obvious hoard house.

Now and then, I see a girl, probably around thirteen years old, riding a Razor® scooter up and down the driveway, over and over. I've never seen her ride it on the sidewalk or in the street. She always has such a forlorn look on her face.

I haven't stopped to say hello to her (cue visions of breathless reports on the evening news about a 40-something year old stranger approaching a 13 year old girl in her driveway), but every time I see her, I want to tell her that she isn't alone and that things can get better.

I think I'm going to print out a Children Of Hoarders, Inc. flyer (downloadable as a 470 kB PDF file) and put it in the family's mailbox. Better yet, I should just print up a few to carry in my car, and when I see a kid in such a situation, I shouldn't be afraid to get out of the car, hand a flyer to the kid, and tell them that they are not alone.

Then again, the flyer is written more for an adult than for a teenager. Thoughts?

Click on image to download 470 kB PDF version of COH flyer.

Dust Bunnies

©iStockphoto.com/TheCrimsonMonkey.

I'm guessing that if I ever sign up for an online dating site, this line won't exactly reel 'em in:

"I'm in my forties, I'm fairly accomplished, and, deep inside, I still struggle with feeling like I'm worth less than a dust bunny."

There. I said it.

Tonight, I found myself writing the "dust bunny" sentence in response to a remark someone made about the deep, lasting impact of growing up in an environment where parents appear to value stuff—even stuff that belongs in a biohazard container—more than they value the psychological and physical needs of their children.

I know that I am worth more than a dust bunny.

I just don't always believe it.

After all, I spent just under half of my life surrounded by evidence that I wasn't.

A big part of the struggle is recognizing that the scar is real, that it is significant, and that I am not being a weak, whiny little kid by acknowledging that the sustained conditions of my first eighteen or so years will naturally echo across the decades.

At the same time, a part of me tells me that I'm in my forties, and it's weak and whiny to blame things that happened more than twenty years ago for how I feel today.

Meanwhile, another part of me insists that I grew up surrounded by cobwebs and cat feces, and that I have a hell of a lot of nerve to think that I deserve better than that. If there is anything truly evil in my life, it is that voice, and I speak with it every day.

PS. Before anyone gets too concerned about schizophrenia, I don't actually "hear voices," or anything like that. I just tend to have melodramatic internal dialogues. :)

Hoarding Awareness Month

Via the COH Facebook page and the Hoarding Project, I hear that Minnesota Governor Mark Dayton has proclaimed September 2012 as "Hoarding Awareness Month."

By itself, a proclamation doesn't change things very much, but it demonstrates that awareness of an issue is rising, which suggests that more effective change might be on the way.

Thank you, Governor Dayton!

One state down. Forty-nine to go.

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STATE of MINNESOTA - PROCLAMATION

WHEREAS: Hoarding is behavior characterized by three criteria: the acquisition of, and failure to discard, a large number of possessions; clutter that precludes activities for which living spaces were designed; and significant distress and impairment as a result of the hoarding; and

WHEREAS: Hoarding is a mental health concern found to be related to genetic vulnerability, mental health, cognitive deficits, trauma, or loss; and

WHEREAS: It is estimated that between two and five percent of people in the United States hoard. When the effect upon family and community members is taken into account, the problem becomes even greater; and

WHEREAS: Treatment for hoarding is often ineffective, possibly due to a lack of understanding of hoarding behaviors in the public and professional sectors; and

WHEREAS: Studies show homes that took ten years to become "hoarded" will likely become "re-hoarded" within three to six months of the clean-out. Clean-outs done without accompanying therapeutic intervention can pose a tremendous financial burden on individuals, families, government agencies, and communities; and

WHEREAS: Increasing public awareness of hoarding will benefit local government agencies, individuals and families affected by hoarding behavior, and communities across Minnesota.

NOW, THEREFORE, I, MARK DAYTON, Governor of Minnesota, do hereby proclaim the month of September, 2012 as:
HOARDING AWARENESS MONTH in the State of Minnesota.

IN WITNESS WHEREOF, I have hereunto set my hand and caused the Great Seal of the State of Minnesota to be affixed at the State Capitol this 31st day of July.

(Signatures: Mark Dayton, Governor, and Mark Ritchie, Secretary of State)